Wednesday, August 26, 2009

Lupus Research Institute Capitol Hill Advocacy Day -looking back and forward!

Somehow it seems appropriate that I am planning my second Lupus Research Institute Capitol Hill Advocacy Day trip as Senator Edward Kennedy goes from being a living legend to a part of the legacy. He was so inspirational when I heard him speak to young Democrats at the Conventions. My participation in Democratic politics and as a Delegate led me to focus my activism specifically on the cause closest to me, Lupus. ~ I just booked my tickets and hotel, thanks to my husband's frequent flier miles and hotel reward points. I will going to the 2009 Lupus Research Institute Capitol Hill Advocacy Day - on September 14 (advocacy training and the latest Lupus news) & September 15 (on Capitol Hill, speaking with members of Congress)

Looking forward to it, is an understatement. I can't wait to get back "in the the Loop" (I know it's inside the Beltway) for Lupus. I hope you can join me and the coalition of Lupus organizations that are participating in the 2009 Lupus Research Institute Capitol Hill Advocacy Day.

Looking back on last year's Capitol Hill Advocacy Day, I am proud and humbled that I was able to take part in conversations with Members of Congress on Capitol Hill about funding innovative research so that we can find a cure for Lupus patients, educating medical professionals about the signs of Lupus, which will lead to early diagnosis and proper care of Lupus patients and other Lupus issues. These conversations led to Congress funding NIH Lupus research and programs to educate medical professionals. Pretty much exactly what we asked for. That's why it is so important for us to have a voice and speak for ourselves on Capitol Hill. Whether you have Lupus, care for someone that has Lupus or simply know someone with Lupus. Please join me on September 14th and 15th and let your voice be heard.

See you in Washington, DC!

1 comment:

Elise said...

Hello, you have the most fabulously wonderful site here and I had to leave this comment for you ! Your posts are beautifully written, creative and original too, and you have interesting pictures.

It's all perfect !

Thank you for sharing your site and best wishes.... 'Happy September'....