Thursday, November 18, 2010

ALR LA "Walk with Us" to cure Lupus!

ALR Walk in Santa Monica ~ November 13th was a perfect day to take a walk on the beach for Lupus Research. After raising awareness for the Alliance for Lupus Research Walk a few weeks earlier by getting "mic-ed up" for an interview on The Sound FM, a Los Angeles radio station. It was time to take steps for Lupus Research. I strongly support the Alliance for Lupus Research because 100% of every dollar raised goes directly to funding Lupus Research. Robert Wood Johnson started the ALR after his daughter contracted the illness. He wanted to help find and fund the research that will lead to a cure for Lupus. Robert Wood "Woody" Johnson also owns the New York Jets and my husband is an ex-New Yorker and proudly wore his NY Jets shorts and baseball hat supporting the man behind the Alliance for Lupus Research. The Alliance for Lupus Research website is www.LupusResearch.org


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Wednesday, November 17, 2010

Toni Braxton Reveals She Has Lupus, Gets Lady Gaga's Support | Billboard.com

Yesterday I had the immense pleasure of spending some time with Toni Braxton at the Lupus LA 2010 "Hollywood Bag Ladies" event and if you watch the video in Toni Braxton Reveals She Has Lupus, Gets Lady Gaga's Support | Billboard.com you'll see that I created it! Lupus Awareness is fun!


Sunday, October 31, 2010

"LA Lupus Lady" a Halloween costume that raises Lupus Awareness!


Not sure when I decided that I would be "LA Lupus Lady" for Halloween... After 26 years as a Lupus patient and a few years of being a Lupus advocate, I feel comfortable as @LALupusLady on twitter and once I chose my costume, or as my friend says my costume chose me. (Not unlike, a Lupus diagnosis...) I knew that I wanted to represent the strength and courage of the Lupus patient, the grace and beauty of being a Lady and most of all a sense that "raising Lupus Awareness is fun." The bright purple and orange are two colors of Lupus organizations that I support and advocate for. I enjoy finding the joy of Lupus and hope that you enjoy the video.

Amanda
@LALupusLady on twitter and "LA Lupus Lady" for Halloween!

Wednesday, March 10, 2010

One step for me, one step for Lupus.

Long time no blog... (I know... I could spend an entire blog apologizing about my procrastination issues or I could delve right into the reason I am writing right now...)

For the very first time, Lupus LA will have runners participating in the LA Marathon and the day before the Marathon, I am going to participate in the first Lupus 5K of the year. There are a number of lupus organizations who organize different Lupus Walks throughout the year. The Lupus 5K, in association with the LA Marathon, will benefit "Lupus LA". I am proud to be a member of Team Life Without Lupus. I do not run. I do not jog. My plan is to put one foot in front of the other until I am done. One step for me, one step for Lupus. If the mood strikes me, I will skip along a portion of the course as I realize how lucky I am. Lucky that I am healthy enough to get out of bed and take steps towards funding a "life without lupus". Each time I train (a.k.a. work out) for the Lupus 5K, I remember that there are Lupus patients who cannot walk, so I am walking for them. (To be honest, sometimes that isn't enough of a motivation to get moving--I know, bad Lupie!)

It is those times that I channel my alias, LA Lupus Lady, and know that I need to move forward for Lupus. I can "strut my stuff" while raising Lupus awareness. The notion of "strutting my stuff" comes from the Purple Lab NYC lip gloss "Huge Lips, Skinny Hips" shade Red Sole, whose name was inspired by the bright red bottoms of shoes designed by Christian Louboutin. When I put on this gloss with Hoodia (an appetite suppressant) inside it, even though I am donning my cross-trainers instead of stilettos I feel comfortable in my skin and my stride finds a swagger that was missing before. I find my "Red Sole Strut". The best thing about wearing "Huge Lips, Skinny Hips" while I am in training is that I look good and the gloss isn't sticky, so my hair doesn't stick to my plump pout. I feel the Hoodia working and while I am out on the street putting one foot in front of the other, I remember that I am wearing my Purple Lab lip gloss and I can "train" for 5 more minutes.

The best part of my Lupus 5K training is the "ritual soak" I take after a good long walk. I love combining Epsom salt with an essential oils and linger in the tub. After that I slather on the lotion and conk out. While I have not been remiss in my training for the Lupus 5K, I have been lacking in the fund-raising department... which leads me to post this now.

On March 20th, I am taking steps to raise Lupus Awareness. Please help by donating what you can to my effort for Lupus LA. Click on the link www.firstgiving.com/lalupuslady and donate what you can. Thank You!
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